Reece's Rainbow is TEN | #RRisTEN #OurWorkIsNotDone

How Much Do You Know About Cerebral Palsy? | Guest Blogger :: Jenny Pohl | Reece's Rainbow

So how much do you know about cerebral palsy (CP)? I knew nothing, until I was about 22 years old, and spent a year volunteering at a residential school for children with CP. Now, I'll admit that this is going back a few years – to 1985, in fact – but the children I worked with back then made a huge impression on me. Since then, I have worked with many many children with a wide variety of disabilities, but I must say that kids with cerebral palsy are the ones I am drawn to again and again.

Children with cerebral palsy are all in some way physically impaired, though this varies from child to child. Some may only have a slight limp, with their CP being hardly noticeable. Other may be unable to walk, stand, or sit independently, needing total care for their entire lives. Some children with CP may also have other conditions, such as learning impairments, seizures, and vision and/or hearing issues.

In a nutshell – every child with CP is different!!

There are currently about 80 older children with cerebral palsy listed with Reece's Rainbow as available for adoption. Every one of these children is now eligible for a $10,000 adoption grant! Depending on where they live, these children many or may not receive any kind of therapy or medical interventions to help them. Some orphanages do provide education and therapies, but sadly, most do not. Those children who are unable to walk are likely to be bedridden for their entire lives. Children who in the Western world would be in school, getting an education and living a normal life, are destined to spend their lives in an institution with no hope for the future, just because they were born with CP.

Below, I share the profiles of a few children with cerebral palsy. I chose these children because they were born in 2003, the same year my son was born. If you click on their name, you will be taken directly to their profile.

Lane's profile doesn't say much about him, other than that he has “cerebral palsy, tetraparetic form”. This basically means that all four of his limbs are affected by the CP. His photo shows him in his crib/bed - he seems to be pleading with his eyes, doesn't he?


Bianca has very mild CP, and her profile is pretty extensive. In a nutshell, she goes to school, can talk in complete sentences, and is independent in her daily living skills. Please click on her name to read more about this wonderful young lady!


Mitch is another child with a short profile. It states that he can walk, is "mentally healthy", and very very much wants to be adopted. Is he YOUR son?


Next, we have Anton. I cannot help but smile when I see his picture, but that smile is quickly followed by sorrow, when I realize what he is missing. He needs a family to get him out of that crib - can you see the potential in this young man? He looks amazing!


Flynn is a "Lost Boy". He lives in a very remote institute, and receives just basic care. He spends his days sitting doing nothing. Absolutely nothing. He deserves so much more than this, don't you think? Please see Flynn today - I have no doubt that he would make a wonderful son, and would learn to smile surrounded by a family.


Daniella. When you look at Daniella, do you see a child with cerebral palsy, or do you see a beautiful young lady, who needs a mommy to fix her hair and take her clothes shopping? Please see Daniella today!


Lastly, we have Mason. His profile states he has "profound mental delays" as well as cerebral palsy. The orphanage cannot keep him much longer. They will try to hold him till the end of this summer. If nobody commits to him, he will be transferred to a terrible institution forever, and it will be very hard to pull him out from there.

In other words - if he isn't adopted before transfer, chances are he will never be able to be adopted.


As stated above - these children were all born in 2003 - meaning they are 12 or 13 years old.

They all have cerebral palsy. Some are affected very mildly, others more severely.

They are just a handful of the children over the age of 10, listed on Reece's Rainbow, who have CP.

They are all eligible for a $10,000 adoption grant!!

I have seen many children with CP who have been adopted - children who were confined to their cribs in the orphanages - children who have thrived once home with a family. I truly have seen miracles unfold before me - once a child is given hope, and given love, they can defy all odds. Along with therapy, and medical help, these children can begin to live the lives they deserve. They can begin to LIVE.

While I realize that we cannot all adopt - we are ALL capable of shouting for these children.

If you are on Facebook, please share them.

If you have Twitter or Instagram - please share them.

If you write a blog - please share them!

If you can - donate to them!

Any donation to the children over 10 years old will go into a grant pool, which will benefit every single older child that is adopted.

The children with cerebral palsy are listed under the "Other Angels" categories - the older boys can be found HERE, and the older girls HERE.

At the top of each link, you will see a big pink DONATE button - that's where to click when you want to donate to the older children's fund. No donation is too small!

Again - if you can't adopt or donate - please share!!!

21 Truths About Down Syndrome | #wdsd2016

Today is World Down Syndrome Day 2016!

21 March 2016 marks the 11th anniversary of World Down Syndrome Day. It is officially observed by the United Nations. Each year the voice of people with Down syndrome, and those who live and work with them, grows louder. But there is still so much more we can do.

Reece's Rainbow is working to do more by doing our part to share the TRUTH about Down Syndrome! So, for today, here is a repost from four years ago! From 21 beautiful families of children with Down syndrome and their TRUTH about Down syndrome! We'd love to invite these families (and ANYONE ELSE) to leave an updated photo of their child in the comments!

We'd love to hear from YOU! Please add your TRUTH about Down syndrome in the comments below and share our WDSD 2016 '21 Truths About Down Syndrome'!

Grab This!

CLICK HERE to order your Reece's Rainbow WDSD clothing and gear NOW with our WDSD “One Word that Describes Your Child with DS” graphic on them to wear and use proudly throughout the year! Celebrate World Down Syndrome Day with Reece’s Rainbow!

Happy World Down Syndrome Day 2016! #wdsd2016

Today is World Down Syndrome Day!


Every year, on March 21 (to honor the 3rd copy of the 21st chromosome presented in Down syndrome), the world comes together to raise awareness and advocate for people living with Down syndrome.

Have you grabbed our WDSD button to put on your blog/facebook/twitter?

It's the FINAL day of our 21 Days of Hope campaign! Please DONATE and SHARE! We have a MATCHING GRANT for 21 of our waiting children with Down syndrome!



It's also not too late to order t-shirts, journals, cups, tote bags, etc with our WDSD “One Word that Describes Your Child with DS” graphic on them to wear and use proudly throughout the year! Celebrate World Down Syndrome Day with Reece’s Rainbow!



We'd LOVE to hear from YOU! Share YOUR child with Down Syndrome in the Comments!

The next time you see a person or child with DS, stop… take notice. That life is nothing short of a miracle. The termination rate for pregnancies with DS diagnosis is now up to 94%. That is staggering. So, not only are you seeing the blessing of a person with DS, [made closer to the image of God than the rest of us], you are seeing the miracle of a life that many are trying to completely eliminate… I believe, hand on heart, that the two points are most definitely related…
(Lucille Brown)

Celebrate WDSD16 with Reece's Rainbow!

World Down Syndrome Day 21.3.16

Be Sure to Order Your WDSD Gear NOW!

Order your  Reece's Rainbow WDSD clothing and gear NOW   so you will have it in time to wear it and share about it on WDSD 2016! World Down Syndrome Day (WDSD), observed on 21 March every year, is a global awareness day which has been officially observed by the United Nations since 2012.   The date for WDSD being the 21st day of the 3rd month, was selected to signify the uniqueness of the triplication (trisomy) of the 21st chromosome which causes Down syndrome. Get the "One Word that Describes Your Child with DS" button, t-shirts, totes and LOTS MORE!   Reece's Rainbow

Apathy Never Moved a Mountain | Reece's Rainbow

CHILDREN OF THE STATE

If you are involved in any way in the world of international adoption, you will have heard about the Russian Adoption Ban passed in December 2012.

If you haven’t heard what it is, you will know after watching this film. If you didn’t have all the facts surrounding the events, you will after seeing this. It will all be made glaringly obvious.

You will watch as Russian families, orphanage directors, politicians all share their views.

But be warned if you are an advocate of international adoption, you will also see the children we have advocated for still living in the orphanages. Still waiting for a family.

The layers upon layers of misinformation and political strategies are evident. As are those who are the pawns, paying the ultimate sacrifice for this international game of chess.

So many of us who have advocated and watched as the door was slammed shut on Russian adoptions have become apathetic. After all, how could we ever change this? 

I will tell you. Apathy never changed anything. Apathy never moved a single mountain.

But…

The king’s heart is in the hand of the Lord, Like the rivers of water; He turns it wherever He wishes.

Proverbs 21.1

I saw Kadyr. My Kyle. The child who’s eyes drew me in and I used in more of the RR graphics and promotional products than even Reece, was in the film. I wasn’t expecting it. When I saw his eyes after the ban and his transfer to institution the gentle and calm I initially saw was replaced by terror and then to hear of his death was heartbreaking. The family who had tried to adopt him prior to the ban, were devastated. To see him in this, it broke my heart into a million pieces once again.


Prayer.

If my people who are called by my name humble themselves, and pray and seek my face and turn from their wicked ways, then I will hear from heaven and will forgive their sin and heal their land.

2 Chronicles 7:14

There is also a little girl in the same orphanage as the girl the Morriss family had been adopting that is another of the children for whom I have advocated. So this is deeply personal to me on many levels. It is for the hundreds of families who were in process and had to leave their children behind when the ban happened.

Faith.

The mountains melt like wax before the Lord, before the Lord of all the earth.

Psalm 97:5

I am asking you to pray for the children in Russia. I am asking you to pray that the exact right people will see this film and I’m going to ask YOU to see it and encourage your churches or other organisations to show it. I am asking you to consider these children, the least of these. I am asking you to be on your knees in prayer for these precious children.

The effective and fervent prayers of a righteous man avails much.

James 5.16b 

But, besides praying, it is so important that we continue to fight for these children. The three year anniversary of the ban is next month. Katrina has fought so hard and is an amazing woman, I am proud of all she’s done, despite it seeming like a very lonely battle. But know that she isn’t alone, there are many others who are also tirelessly fighting for these children.

CHILDREN OF THE STATE from CAT&Docs on Vimeo.

Please watch the film. It is $3.99 to rent or $9.99 to purchase for in home viewing. The money helps further the promotion of the film.

It would be wonderful if churches and universities would show the film. The cost is $50 to publicly screen the film (in a church, university or library). Please contact Catndocs for a public viewing license (cat@catndocs.com)

Children of the State is now available to rent and purchase through Vimeo.
To publicly screen the film in your church/university/library, please contact Catndocs for a public viewing license. cat@catndocs.com
https://vimeo.com/ondemand/childrenofthestate/108227844
Comments and reviews welcomed on film FB page.
https://www.facebook.com/childrenofthestate/
Thank you for your support.

You can share this blog post, you can share the film from the Facebook page (https://www.facebook.com/childrenofthestate)

You can follow and share from the Parents United for Russian Orphans Facebook page (https://www.facebook.com/parentsunitedforrussianorphans)

Do something… 
Apathy never achieved a thing...



Thank you for taking the time to read this and for all you do to support Reece's Rainbow and the children for whom we advocate!

The 2014 Reece's Rainbow Awareness Buttons

The new 2014 Reece's Rainbow Awareness Buttons are here! It would be an understatement to say that the pots of gold buttons are the favourites by a landslide!

There is a selection of other buttons, as well, that you can put on your blogs, some with corresponding facebook timeline covers and there are more to come! Be sure to check for the Christmas facebook covers and other Christmas buttons soon!

Be sure to scroll down for the Pots of Gold and if you would like your own Reece's Rainbow Pot of Gold on one of our awareness buttons, be sure to send your photos to us and we will be adding to our collection!

Here are a couple of them for you to have a look, but don't just sit here, go to the actual page and get yours!

CLICK HERE to share Reece's Rainbow on Your Blog! Thank you!

CLICK HERE to share Reece's Rainbow on Your Blog! Thank you!

CLICK HERE to share Reece's Rainbow on Your Blog! Thank you!

CLICK HERE to share Reece's Rainbow on Your Blog! Thank you!

Use it or lose it: Opportunity | Reece's Rainbow Guest Blogger Gretchen Thibault

Guest Blogger: Gretchen Thibault

Welcome to guest blogger, Gretchen Thibault! Thank you so much for sharing with us and be sure to watch the video at the bottom! You will love it!

I’m not sure why I feel the need to weigh these two things, but, I wonder which life experience had a greater value: traveling to Eastern Europe, meeting our children with Down syndrome, showing them love, and bringing them to a new life where they are unconditionally cherished…..FOREVER? Or, traveling to Eastern Europe and having the opportunity to teach doctors the joy of Down syndrome so they will hopefully love and cherish them, unconditionally ….FOREVER?

Why not do both?

I’ve traveled three times to Eastern Europe in the last 3 years. The first was to adopt our 8th child who was a little boy Down syndrome. The second was a trip to Bosnia to teach Ukrainian Ob/Gyn doctors and medical students about the blessing of Down syndrome. The third was to adopt AND to teach.

A Pilgrimage of Life....Ukrainian doctors and medical students learning about the dignity of ALL human life.

If our children really are “teachers of our souls” as I claim them to be, than we need to share what we have learned everywhere we can. There aren’t many people who say, “I hope I get pregnant someday with a child with Down syndrome.” But, those who have a child with Down syndrome wouldn’t trade their joy for anyone or anything. We must let people know that. Yes, even people right here in our country need to know this. Our children clearly aren’t yet accepted fully when here in the US 90% of our children’s Down syndrome peers are snuffed out before birth following prenatal detection. In Eastern Europe, upper 90% of children are abandoned at the hospital following their birth. Their joy is undiscovered by their birth family. And if it is realized, the system isn’t one that supports their upbringing.

How will hearts change?

We MUST use every moment…EVERY opportunity.

While it wasn’t easy to do, we decided on our first adoption to Ukraine to bring our other son who has Down syndrome. Though a struggle, it was filled with blessings. The orphanage director, caregivers, the lawyer, the social worker, and the public got to meet Ricky. He’s a rock star. He makes a statement when you see him: his red hair, blue eyes, blue glasses and ALL that personality. Many questions were asked and we gave many answers. Ricky was a witness to what a child with Down syndrome CAN be when given a chance.

The Thibault Children

Ricky, Ksenya, Stas

When I traveled last summer to Eastern Europe to teach medical students about the blessings and dignity of a child with special needs, with an emphasis on Down syndrome, my portion of the seminar was saved for last. Until then, their hearts weren’t ready to hear all I had to say. They needed to be primed by the seven days of talks before mine in this Pilgrimage of Life. Forty-six medical students and doctors, many of whom left home with little understanding and appreciation of our special kids, went home with a deep affection for them. They even sent me home with extra kisses to deliver to my boys.

Ksenya

Our last adoption, just two months ago from Ukraine, resulted in a montage of opportunities. While the adoption of our new daughter was our primary purpose to travel, I was able to meet with different groups and individuals as well. It is strange to be treated like a mini celebrity and a phenomenon at the same time. Why? Because I have 9 kids and three kids adopted with Down syndrome. Okay… I guess it isn’t THAT common. But to them, to have even one child with Down syndrome is more than extraordinary. It’s an awkward feeling. But, again, I used each opportunity to benefit our kids. You HAVE to use every moment. While a language barrier frequently separated us, a smile and the look of a proud mama with many blessings translated very well.

One trip to save one child can be a trip that saves many children and many souls. Be a witness of joy. If you are traveling soon, each time you kiss and hug your child whom you’ve just met, remember you are witnessing to the fact that you can love a precious being even when you hardly know them….YOU are witnessing that they have value, dignity and are deserving of the very thing that every child is deserving of…LOVE

One closing thought…you don’t have to go overseas to use these opportunities. If you shop…don’t lose the opportunity at the Target checkout, in the doctor’s office, with the repairman or the mailman. Seize the moment….share your joy….we can’t afford to let any opportunities get lost. My husband wonders how I can manage to always make a conversation with a stranger near always turn to our youngest three….it’s easy because our kids can’t afford for us not to do so.

Ksenya Baptism

Thibault Family

**I recently had the opportunity to make a video about Down syndrome that will be translated and narrated into Russian/Ukrainian. My hope is to help more people see the joy that our children are to us. I hope you enjoy our story and see how much we enjoy our blessings.

Feels Like Home

Dear Friends of RR,  today we posted a brand new video called "Feels Like Home".  You can view it here, be sure to turn up the sound, and repost it on your own blogs.  

After 6 years, more than 800 children home/committed to, and more than $4 million in grant funding disbursed, one might think it would be easy to get up and do this every day.  We rejoice in these videos, because photos of our children who are now healthy, happy, and loved are such a tangible reminder of the good that does come from our efforts.  We have such an incredible, growing base of support, and we are changing the world one adoption at a time.

But some days, even when you see 800+ home, you have 1000 more children's faces staring back at you from the website....and you find new waiting children every day.  It's tough to keep your head up and keep hoeing that row every day.   It's tough to keep asking for money.  The need is so great, Lord....I am but one...we are but a few....and He reminds me "it doesn't matter how many are waiting, I will give you the means to FIND THEM and to find FAMILIES for them".  And He does.  Every single day.  No matter what the challenge, no matter how weary we feel, no matter how overwhelmed, helpless, or behind the 8-ball it seems....keep your head up and shoulders back.  

Celebrate with us....6 years!  Celebrate LIFE, LOVE, and HOPE with our new video! 

Andrea

Celebrating 6 years of service to orphans with special needs.

My Own Little Starfish

CLICK TO VOTE   Historically our Angel Tree has only included our waiting orphans with Down syndrome from 0-5 years of age. We have averaged approx (185) children on the Tree each year. But every year we have advocates and donors ask us “PLEASE, can you include the older kids, or the other angels, or the kids with HIV”? Let not your heart be troubled, we have heard you! We KNOW that “it makes a difference to this one“. So this year we are going to give three children in each category a chance for a spot on our Angel Tree, complete with photo stickers and available ornaments! And YOU get to play a very important role in which children get that opportunity. We hope this will provide even greater visibility and awareness for ALL of our waiting children.

CLICK IMAGE TO VOTE

The details, read carefully: Each week, for the next 13 weeks, starting July 27 and going through mid October, we have a few special things happening for each different “category” of waiting children on our site. VOTE! (11) children from the other 13 categories of children have been chosen by each of the members of our leadership team. This list of (11) will be presented for a vote each week! EVERYONE can vote! It’s free! The voting will go for one week, from Friday to Thursday at 5pm eastern. Winners will be announced Thursday evening and a new set of children/category will be posted on Friday morning. You only get ONE CHANCE to vote for ONE child in each category. A weekly form will be posted on this page to record your votes. At the end of each week, THREE children from that week’s category will earn a spot on our Christmas Angel Tree. The children with the top TWO votes will get a spot on this year’s Angel Tree! The 3rd child will be chosen by the winner of a DRAWING! For a $5 VOH donation, your name will go into a pool, and the winner gets to choose whatever child from that category they want to be included on the Angel Tree. A GUARANTEED spot on the Angel Tree! It doesn’t get much better than that. You get to choose your own little starfish! You can give for as many entries as you wish, so if you want five chances you donate $5 x 5 =$25, etc.

Categories: DS Boys 6-9 DS Girls 6-9 DS Boys 10+ DS Girls 10+ OA Girls 0-5 OA Girls 6-9 OA Girls 10+ OA Boys 0-5 OA Boys 6-9 OA Boys 10+ HIV 0-5 HIV 6+ HIV 10+

The Fine Print: Donations MUST be made via Paypal through the weekly link. There simply will not be time to receive, document and include check donations for this drawing. Use Facebook, Twitter, your blog, email, whatever source you wish to encourage your friends and family to vote each week. Remember, the voting is FREE. At the end of each week the votes will be tallied and the top two children announced and posted here. Same thing for the drawing. If one or more of the chosen children finds a committed family before the official start of the Angel Tree (on November 1), the child with the next most votes will be bumped up and/or the original winner will get to choose another child. The same applies if a child becomes unavailable during this time, ie: adopted outside RR, taken into foster care, etc. RR Leadership Team and Board Members are not eligible to participate in the drawing. The vote and the drawing are completely separate. You can participate in both. One vote per person per category per week. Drawing entries, as many as you want to donate for. All donations will go to our Voice of Hope fund to help with the costs of the upcoming Buddy Walks and the Angel Tree. We’re so excited about this change and hope everyone loves it and participates!

Drawing:   To Enter the Drawing, CLICK HERE to make your Voice of Hope Donation.

VOTE HERE

 It Makes a Difference to This One!  

 

"It Makes a Difference

to This One" 
is our newest

awareness campaign!

   

 

 

                            Please let the world know that
                            it DOES matter,
                            each child,
                            each adoption,
                            each family,
                            each CHANCE to be found....matters.
 

Grab our buttons & other graphics from the blog!   Click Here to put our 'It Makes a Difference' button on your blog!

What you can do: Save our starfish graphic! Add one of the buttons to your blog! Make it your profile picture on facebook/twitter/anything! Get the tshirt!

Visit the RR Shop! for 'It Makes a Difference' gear! (Other items, including car magnets & posters to be added soon!)

It Makes a Difference to This One!

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