Friday, October 28, 2011

It's Coming! The Christmas Angel Tree!



 
Be sure to have a look at the NEW Angel Tree Dollars!

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Wednesday, October 26, 2011

Reece's App Now for Windows Phones!

We have the hardest working app designer there is. We are very proud to introduce to you our newest Reece's Rainbow app, the new Windows app!

If you have a Windows phone, please be sure to get the Reece's app!

Here are some screen shots:
The Windows app is $0.99 and all but Window's portion goes to the Voice of Hope fund!

You can download it from Windows HERE.


Requirements: Windows phone 7 or higher.
Here are some features worthy of mention...
  • Out of our three apps, Android, iPhone/iPad and Windows, it quite possibly runs the smoothest on the Windows app.
  • The pictures show up brilliantly and there is a refresh button on the main screen so every time the app gets updated, it's instantly updated on the users phone .
  • There is an option inside the app under settings that allows the user to take screen shots within the app. So, if the user wants to share something on our blog or site, they can take a screen shot of what they are viewing and save it to the phone to be added in a message or email or whichever method the user is using to send it.
  • Also, Reece's is the only adoption app in the market!



As I mentioned previously, we have been so blessed to have a wonderful app developer come alongside us and offer to make these. We are more than impressed with how quickly he set them up, as well!

Don't forget our Android app, and our iPhone/iPod/iPad app!

FREE Android App $0.99 iPhone/iPod/iPad App $0.99 Windows App

Our developer also has another iphone/android app for parents with children with Down syndrome that we featured HERE. Graci's story includes stories and resources for parents who have a child with Down syndrome. 

If you have a business or product and are interested in developing and iphone/ipad or android app, please contact TeamCaz. We can definitely recommend him with confidence.


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Sunday, October 23, 2011

Speak to Me...

Tired of your child stealing your laptop?  Well get them one of their own!

What is it:  It's the Tote and Go Latpop from Vtech.  This toy was named one of the top 10 toys for children with special needs by Parenting Magazine.

What does it do:  Your child can play one of 20 learning activities that teach letters, spelling, vocabulary, numbers, counting, logic, and shapes. For added usability, this educational toy also features a PC connection that allows for additional downloadable content such as stories and customized e-cards. The Tote & Go Laptop also includes a pretend social network of helpful animal friends that your child can visit, as well as a virtual fish tank that your child can care for. This portable learning laptop has a basic ABC keyboard and working mouse that stores in the top of the unit.
This toy promotes interaction by encouraging verbal replies.

Where do I get oneVtech's Tote and Go Laptop can be purchased at Amazon.com for around $19.99.

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Wednesday, October 19, 2011

As One We Can :: The Chirch Family

Kaylee
This week I'd like you to meet the Chirch family. They're in the process of adopting a beautiful little lady named Kaylee. Alyssa and Derek Chirch have three children. Samantha who is 16, Cade, 14 and Logan, 10. Derek works for a Christian school as an Administrator and Athletic Director and Alyssa is a Case Manager for a company advocating for people with special needs. Both Derek and Alyssa had God preparing them for their hearts to be opened to adoption even before they met. This is their first adoption, but are already prepared to have their hearts ready to receive the other children with which God will grow their family through more adoptions. They're excited to have Kaylee home and are in the process of waiting for a travel date. 

They've done a lot of fundraising! They still have some fundraisers going on now and right now they also have a matching grant that goes till Oct. 27. You can read all about them, follow their journey to Kaylee and read more about the ways you can help them financially by going to their blog: http://kayleeshope.blogspot.com/

To read about their matching grant & how to help by donating to it go here: http://kayleeshope.blogspot.com/2011/09/help-us-with-our-matching-grant.html

Or if you'd like you can make a tax deductible donation right to their family sponsor page. http://reecesrainbow.org/sponsorchirch

  Anyway you can help is always greatly appreciated! :)

Carry each other’s burdens, and in this way you will fulfill the law of Christ. Gal. 6:2



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Tuesday, October 18, 2011

Owen's Angels :: Angel of the Week


 





 This Week's Owen's Angels!

Our new correspondent, Owen Roberts, will be sharing his choice for our Angel of the Week.



Please meet Owen's Angel of the Week: (refresh to see new photo)

Meet Richie!




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His hair is pretty irresistible!


If you would like more information on Richie or any of the other children, please contact us

Please help Richie find his forever family by sharing him on facebook, twitter, your blogs and any social media you use! Thank you so much!

He can be found here: http://reecesrainbow.org/richie-15h


rzjz-15
Date of Birth: June 2006
Gender: Male
Eyes: Gray
Hair: blond

Available and waiting for a family!   His hair is pretty irresistible :)

$45.00 is available towards the cost of my adoption!
 
Please grab our Child of the Week Button (above) for your blog. Each week this button will change to show the current week's child (you only need to add the button once to your blog). The children that will be featured will be ones with $0 or very low adoption grant funds. By hosting our Child of the Week button we are hoping to not only raise awareness for that particular child but also to hopefully raise the amount in their fund. These funds have proven to help families who would otherwise be qualified and able to adopt them, except for the cost of an international adoption, feel able to commit to bringing home and giving the precious gift of a family to these angels.

Thank you for all you do to support and help Reece's Rainbow!


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Friday, October 14, 2011

Are You a Home Educator? This Will Interest You!

Many in the Reece's Rainbow family are also home educators (homeschoolers) so this may be of some interest to you!

Being one of those home educating families now, when we were approached for permission to put a banner for Reece's Rainbow on their NEW Homeschool Markets web site, I was very interested to see it.

I love the idea of this! I asked them to explain to me so I could share it with you.


Home School Markets (HSM) was started by two parenting families as a resource for Home School families.  It is also a home based and online business for us.  


The model is very simple and HSM offers six different categories: 


          New and Used -Where new (unopened or unused) and used curriculum can be sold. 


          Supporting Materials -Where equipment can be listed for sale.  Examples of items that can be listed here include microscopes, sports equipment, learning games, etc.


          Market -The Market is set up for businesses that are not home based, but that cater to home school families.  We envision this as the location for products, services and offers to home schools.

            Home Crafted -This is the place for home made items to be sold and small home based businesses to advertise. 


         Swap -The Swap category is for the more adventurous to make a trade with one another.


          Wanted -Wanted is the category for all desired items.  This could be anything from support for fund raising to specific curriculum and supplies.  


Our site has a search option by age group, subject and other variables.  Patrons can use Paypal, Credit Cards through Paypal, or can arrange direct contacts and sales with one another.


Registration is simple and straightforward and allows a home school mom or dad to list items going forward.  


Right now, all listings are free until February 2012.  We may extend that deadline for free listings, but for now, that is the target.  From then on, any listing is forty-five cents -without regard to the price.  Any curriculum item (New and Used) listed under $3.00 is free -no charge for the listing from us.  


Finally, we support causes such as Reece's Rainbow by banner advertising the respective "missions" at no cost.  We feel that it is important and an obligation to spread the word about work that change children's lives world-wide. 


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Monday, October 10, 2011

a helping hand :: Milestones That Matter


a helping hand is a new feature on the RR Blog. These will be supporting tools from the experts... or articles written by experts for parents!


This is the third post by from BabySignLanguage.com in our 'a helping hand' series, giving you a tool that can help you improve communication with our children with Down syndrome and special needs.

Their posts have been very well received and their website is FULL of wonderful resources! We're very glad to have them contributing!


Milestones That Matter-How BSL Can Help You Get There

For a child, every stepping-stone is a milestone. Some children leap across these stones so quickly that we fail to notice and celebrate. Others may take longer. We must never forget that the achievement of reaching a milestone is of equal proportion regardless of the speed. A milestone is always a good reason to celebrate.

Children with Down syndrome may not say their first words until age 2 or 3, but there are tons of milestones in between that parents and caregivers can encourage. For example, playing peek-a-boo teaches turn-taking, and this is lots of fun for parents and kids alike!

Listening to music is a way to work on auditory skills. Yes, there are plenty of pre-verbal skills to concur before those first words.

More and more parents of children with Down syndrome are teaching baby sign language as a way to encourage speech development. The benefits that are available to every child exposed to gestural communication are of even greater benefit to parents and children who would have found themselves in a lengthier-than-usual communication gap. Late talker doesn’t have to translate to an extended period of frustration because baby and parents can get their messages across through other avenues other than speech.

Combining sign language with the verbal word encourages speech development. The cycle for a child with Down syndrome may look something like this:

Parents introduce sign language early and often. They use it in addition to traditional spoken word. This can be a frustrating stage because who wouldn’t love to see instant results! Start early and hang in there. Encourage extended family and friends to learn sign language, too. Find other parents working on these same skills; they can be an excellent resource for questions and support.

The child begins to comprehend the sign(s). Receptive language skills are not the same challenge as the expressive language skills; this is part of the reason this area develops first. Also, Children with DS are more apt to be visual learners, so sign language caters that much more to their learning experience. For many, this comprehension of sign language will help ease frustrations because there is understanding taking place even if the communication cannot yet be returned. For example, a parent may ask and sign “are you hungry?” Even though the child doesn’t say or sign a response, many parents can read an interest versus dis-interest reaction.

Children will start using the signs for emphasis or clarification. This doesn’t happen right away. When parents know their child will likely have a speech delay or struggle with articulation, the non-verbal cues are almost always introduced early and therefore it takes longer before we see those signs returned. It is rewarding when we see the signs enter their vocabulary and a relief to understand their wants and needs. The work is worth it!


Usage: The potty sign is tremendously useful in potty training your baby. Using the sign, you can train babies earlier than if you had to wait until they could speak the word. As you potty train your baby, teach them to make the sign to get you to put them on the potty.

Once signing, your child is making progress on everything from their fine motor skills, to verbal language development. They are also able to express their wants and bond that much deeper with their family. Most words that are signed are eventually spoken and develop as spontaneous speech.


Usage: What could be sweeter than exchanging I love you with your baby.

Every child is different and this is just as true for children with Down syndrome. Your child will develop at his or her own pace and while some parents may look at the race to milestones as a sprint, life is best lived as a marathon. 

At Babysignlanguage we are delighted to support families with special needs. We have a huge collection of resources to help you teach and learn sign language for babies and a wonderful set of baby sign language flash cards



If you would like more information on how you can be a contributor to our 'a helping hand' series here on the Reece's Rainbow blog, please contact lucille@reecesrainbow.org.

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Saturday, October 8, 2011

For the Other Angels

Our Christmas Angel Tree is just around the corner (1 November - 31 December)! The Angel Tree is specifically our Waiting Angels ages 0-5 with Down syndrome.

So, just so we don't forget about all of our other children, this post is featuring some of our Other Angels.  Clicking on their names till take you to their profile page on Reece's Rainbow.

Please be sure to read to the end to see our new Prayer Warrior video!

Tina



Girl
FAS
If you are unfamiliar with FAS, please spend some time researching this condition.  Just as with Down syndrome, FAS and FAE have a wide variation of effects on each child, both medically, physically, and cognitively.   This is typically dependent on how long during the pregnancy the mother consumed alcohol, and of course, how much.   There is no way to know this ahead of time.
Regrettably, this orphanage is one of the poorer ones, with very little outside aid and very little hope.    All of the children are tiny and undernourished.  These children are immediately transferred at 4, and have little chance of survival where they are sent.  All of our waiting children need families, but these have a critical need.  Please consider one of these children soon!!
$10.00 is available towards the cost of my adoption! 

Shawn


Boy, born March 2006

What a dear little boy — look how he's holding his stuffed friends closely.  :)

Shawn is also listed as having a "minimal mitral prolapse" which is a heart-condition, but typically a mild condition, and often outgrown without any intervention.  However, an adopting family would want to follow up with a cardiologist once he is home.  He also has "mild hypermetropia" which means he is mildly far-sighted (and likely will outgrow as he grows older).

For more info and parent support on adopting and raising a child with HIV, please visit http://www.projecthopeful.org/
$30.00 is available towards the cost of my adoption! 

Mila (55)


Girl, Born July 5, 2006
FAS and cleft palate
HELP!!!   I HAVE ALREADY BEEN TRANSFERRED!!
Look at this darling little cupie doll! Mila was born with Fetal Alcohol Syndrome, and several complications from that exposure. Her medical records indicate cleft palate, oval window (heart condition), strabismus, and microcephaly (all common symptoms of this condition). But she is also friendly and happy, loves attention, and desperately needs a loving family.
From an adoptive family who visited with her in August 2010:  "She was in a group with two other children. The two little boys were in the playpen. She was free to wander but she stayed in the little area for her group. When she would get a little too close to us, her caregiver would say something quietly and she would turn around and return to her group. I was impressed with her ability to follow instructions."
"The afternoon before, I spied her playing and babbling by herself in a shady spot by the front drive. I did not see more than a few children with her. I have seen her playing with others on other days though.   Truthfully, there are children here who are probably not going to fit in with a typical family. I don't see Mila as one of those children.   She is probably the height of a three year old but wirey, thin, skinny!"
If you are unfamiliar with FAS, please spend some time researching this condition. Just as with Down syndrome, FAS and FAE have a wide variation of effects on each child, both medically, physically, and cognitively. This is typically dependent on how long during the pregnancy the mother consumed alcohol, and of course, how much. There is no way to know this ahead of time.
Mila was blessed to be sent to an older children's home (instead of an actual institution).  But she still needs a family quickly.
$656.00 is available towards the cost of my adoption! 
 

Elena



Girl, Born December 12, 2006
Elena is a beautiful little girl born with CP.    She has blonde hair and blue eyes, and a gorgeous smile and glow about her.   She struggles the most with her left-side limbs, is considered significantly delayed, and also has partial atrophy of the visual nerves.  
  
Elena is still a favorite of the orphanage and will SO benefit from having a loving family encourage and cherish her!   Even being visually impaired, she deserves the opportunity to "see" her world outside the four walls of this orphanage and her crib!
$1045.50 is available towards the cost of my adoption!






Kenneth


 Boy, Born November 27, 2006

Photo dated Feb 2010.  Kenneth is a blonde haired, blue eyed cutie who was born with FAS.  Kenneth does have some spasticity on his left side, and will greatly benefit from therapy and a loving family to encourage him! He is diagnosed with hydrocephaly, but this is a result of the FAS. He is not in need of a shunt to correct (the doctors say).
As you can see from this updated picture, Kenneth is doing GREAT! He wants a mama and papa of his own.
If you are unfamiliar with FAS, please spend some time researching this condition. Just as with Down syndrome, FAS and FAE have a wide variation of effects on each child, both medically, physically, and cognitively.  This is typically dependent on how long during the pregnancy the mother consumed alcohol, and of course, how much.  There is no way to know this ahead of time.

$920.00 is available towards the cost of my adoption! 

Alicia



Girl, Born 2004
SIGNIFICANT RISK, PLEASE ADOPT ME SOON!!  SCHEDULED FOR TRANSFER IN AUGUST!!

 Miss Alicia is a beautiful little girl who needs a loving family.  Her other two typically developing sisters were adopted by other families already.   
Alicia was born to an HIV+ mother, and is HIV+ herself.  She has also has significant delays and challenges associated with her FAS.  (fetal alcohol syndrome).  We are waiting to learn if she has any medical complications, but she is cognitively delayed and does show signs of attention deficit and hyperactivity.    Alicia will do best where she can be the focus of attention and have her Daddy wrapped around her finger :)     Alicia has SO much potential, and deserves a family as much as her other sisters do.   I know there is a family out there for this little girl!  She is facing the mental institution soon, but has grown up in a loving and well kept orphanage so far.  A committed family now can prevent her transfer!
From an adoptive family who visited with her in July 2010:  " Alicia absolutely LOVES one on one attention. she is front and center if you are handing out kisses and hugs. You can see she wants a Mama all her own, and it will be so hard on her to have her sister leave to be adopted, as her other sister was already adopted.   (Their mother is deceased, most likely from AIDS).   She likes to swing.   She loved to lay her head in my lap while we were both on the bench swing and I would stroke her hair. The other kids didnt like to share my attention but Alicia was ok with it.   I could have two in my lap and she didn't mind, but she didnt like being crowded out when the other child decided they wanted me all to themselves.  She likes sensory input.   She kept rubbing her arm across my husband's unshaved face and shivering and making the funniest face and then immediately doing it again.  She likes to go down the slide again and again.   She really likes to be in the  middle of whatever is going on, and be included. But often she is excluded, even by attendants.  For Alicia it's a vicious circle. She is delayed, she gets frustrated, they don't let her do things the others are doing, she gets more delayed and more frustrated. She is VERY VERY SWEET AND LOVING.  She needs a family that has only a couple kids, not ten. She has HIV.   If you want a little girl to hug and kiss, she will GLADLY take all the hugs and kisses you can hand out. She isn't afraid of men but isn't inappropriate either. I saw her with my husband as well as another couple of young men who visit regularly.  Alicia is on the small side, like maybe size 4.  The children are valued and loved at this orphanage.   The grounds are visually stimulating and the kids get outside for a couple hours in the morning as well as afternoon.   They even go swimming in the pool they have there.   Hope someone will come for Alicia very soon!"   Alicia is toilet-trained and able to say when she needs to use the restroom.  She has tremendous potential if someone would take her home and love her!  
MORE PHOTOS AVAILABLE, MARRIED COUPLES ONLY
$0.00 is available towards the cost of my adoption!

Sara 3G


y4vd-3
Girl, Born June 2006
Sara is a beautiful little girl who needs a loving family!   She is diagnosed with general global delays, has some strabismus, does not speak very much, and has 6 fingers on one hand.   Info regarding her family history may lend some ideas about her delays and a more realistic and detailed diagnosis.
 Character: sociable, independent, affectionate
$20.00 is available towards the cost of my adoption! 

Alex


Boy, Born May 30, 2001
Alex is a handsome young man who is already living in the mental institution.    Despite this he has a  wonderful, open, and affectionate personality.  His medical records indicate congenital hydrocephaly, but he does not appear "hydrocephalic".  Alex is able to walk with assistance, and will truly blossom with family support and therapy.
From his medical records:  severe grade of mental delay, congenital hydrocephaly, divergent/external squint, glaucoma, lower paraparesis, and flat foot
As with all children living in these difficult conditions,  this child's cognitive development has regressed significantly since he/she was younger.  It is of crucial importance that any family considering the adoption of an older child from the mental institution setting be well prepared for what to expect with regards to how the neglect and lack of adequate medical care and nourishment has affected this child.    These children all have TREMENDOUS potential for improvement, and deserve to have a life outside these four walls. 
These children are truly living on borrowed time, and families should be home study approved before an official commitment can be made for this child.
I AM ELIGIBLE FOR AN OLDER CHILD GRANT

 

Lorie



Girl, Born May 28, 2005
SIGNIFICANT RISK, PLEASE ADOPT ME SOON!!
Look at this little princess!  She is already 6 and facing the institution very soon!!! 
Lorie was born with a spinal hernia and CP, leaving her with weak muscles and limbs.    The hernia was surgically removed, and she is walking with help now!   She does have some strabismus, but is such a gentle and happy child!   She is blessed to still be at the baby house, but will be transferred soon. 
From an adoptive family who visited with her in June 2011:  "She was walking using a walker, I walked up and talked to her and she held my hand and smiled at us. Dariya then walked up and she and Lorie held hands for a bit. When we walked away we said paka and she smiled and waved. Bless her, she needs a family. We learned that this baby house is up to 6 for spec needs so she probably will be here until next year since she just turned 6. Her feet turned in, she would definitely benefit from having braces and PT. The caregiver told us she didn't speak but, she understood us and was sweet."
PLEASE consider saving her, and giving her the chance to maximize her potential in a loving family!  
$3809.00 is available towards the cost of my adoption!
 

Matvey


Boy, Born August 28, 2004

SIGNIFICANT RISK, PLEASE ADOPT ME SOON!!

Matvey is such a cute little boy, with blonde curls!   He is cognitively delayed, but does not seem to have any official diagnosis other than that.  He has amazing potential!!   He was transferred to another region in 2010.
Please give this little guy a chance to fulfill his potential!    One of our own adoptive families who visited with him in March 2008 shared this with us:  "This little guy did NOT want to be photographed!  He was quite happy doing whatever he was doing before being brought into the room but having his picture taken was not high on his priority list.  He has "deep mental delay" (understand that this is according to Eastern European standards — he was more aware and alert than a child with Down syndrome might be at the same age).  I can't tell you his eye color because he down-right refused to look at me, but those blonde curls sure were cute!"
$0.00 is available towards the cost of my adoption!

Chrystyna

  

  Girl, Born January 17, 2002

SIGNIFICANT RISK, PLEASE ADOPT ME SOON!!

Chrystyna is a beautiful, brown haired, brown eyed girl who deserves a chance at a better life!  Her official orphanage papers say she has developmental delays/difficulties from birth, but nothing more specific than that.  It is possible she has FAS (Fetal Alcohol Syndrome).  Her biological mother  was deprived her parental rights in December 2004, and the biological father is not known.  Chrystyna has so much potential, and will be a precious gift to any family who adopts her.
Chrystyna is already living in an institution, so we need a family for her right away!
Chrystyna does have a sister, Karen.   Karen does not have any diagnosed special needs.   If you are interested in adopting both girls, you can do so, or Chrystyna is free to be adopted separately.   Please inquire!

UPDATE:  God has been watching Chrystyna.  She was recently transferred out of the institution into a wonderful facility, where they teach these children, work with them, and they appear very well cared for.  The difference in the few girls who were transferred OUT of the institution is incredible!   Please give these girls a second chance for a loving family!
If you are unfamiliar with FAS, please spend some time researching this condition.  Just as with Down syndrome, FAS and FAE have a wide variation of effects on each child, both medically, physically, and cognitively.   This is typically dependent on how long during the pregnancy the mother consumed alcohol, and of course, how much.   There is no way to know this ahead of time.
$0.00 is available towards the cost of my adoption! 

Andrey


Boy, Born November 29, 2002

From our facilitator who has visited with him:
HIV.    His life story is very typical   The  boy doesn't have brothers and sisters. His mother abandoned him at the delivery house,  the father was registered after the mother's words.  Loves to construct, to draw, very assiduous,  wants to know  everything about What? Where? When and  Who?   Hardworking, can focus his attention and  be concentrated on the most important things.   Among children he is very supportive and friendly. For more info and parent support on adopting and raising a child with HIV, please visit http://www.projecthopeful.org/

$0.00 is available towards the cost of my adoption!





Karen 


Girl, Born January 12, 1996

Karen is the older, biological sister of Chrystyna.   She is a beautiful Roma girl with dark hair, dark eyes, and olive skin.  She is 12 years old.  She is healthy and smart and has no diagnosed special needs.    She goes to school and has no negative behavioral issues.  She is just a pre-teen in need of a loving family!

Karen and Chrystyna are living in different orphanages, but in the same region.  It would be wonderful if they could be adopted together, but our facilitator says it may be possible to adopt them separately.  If you might be seeking a sibling set, please inquire!  Both girls need a loving family!

I AM ELIGIBLE FOR AN OLDER CHILD GRANT

  Emmitt


Boy, Born January 26, 1998
 Emmitt is a sweet boy.  He is living in one of the mental institutions, and has been for many years, yet he remains sweet, intelligent, and kind.  Ttwo of our adopting families met him while they were there, and are pleading for a family to save him.     From his medical records:  myelomeningocele  (spina bifida)   From one of our adoptive families:  " Emmitt has a severe deformity of his legs.  He cannot walk at all.  He is very friendly, funny, and talkative. He desperately seeks out attention.  He was talking to my husband, and holding Zack's hand, which he then put on top of his head for Zack to rub his hair.  He is extremely intelligent, and just precious!  I brought him paper and crayons, and he drew me a flower :) "
We are seeking more official medical information about his condition, but hope someone out there will see this sweet young man and know his kind and loving spirit.
I AM ELIGIBLE FOR AN OLDER CHILD GRANT


Julie



Julie
Girl, Born April 1998

Love this beautiful Pippi Longstocking!    Julie is a sweet, quiet, but energetic, redhead with big blue eyes and freckles.  When she was placed in an orphanage a few years ago, she did not want to speak.  Now she expresses herself reasonably well, with an occasional stutter.    She studies and recites well in her orphanage, but she is about 3 years behind her agemates.  She controls her actions well, is calm, likes to work, draw and play with toys.  She came to a 3-week summer camp in America and lived with a family, who thought she might have brain damage.  Julie was very patient in adult company, played nicely by herself or with other kids, showed determination and stamina in learning how to ice skate mostly by herself, and loved the water park, descending the steepest, scariest slide with gusto.  Julie has a sense of humor and a hearty laugh.  With a good ear for language, she should be able to learn English just fine, once a loving family gives her that opportunity.  She wants a family of her own. 
I AM ELIGIBLE FOR AN OLDER CHILD GRANT

Owen 3G


Owen (egxb-3)
Boy, Born December 2007
This darling little boy is waiting for his forever family, and we believe his condition to be one called Saethre-Chotzen Syndrome.
Also known as Acrocephalosyndyldactyly Type Chotzen or Saethre-Chotzen Syndrome. Chotzen Syndrome is a dominant genetic condition. They have a tower-shaped skull (acrocephaly), fused fingers and/or toes (syndactyly), asymmetric face, widely spaced eyes, droopy eyelid (ptosis), strabismus (crossed or "wall-eyes"), beak-like nose, small upper jaw, and jutting out lower jaw (prognathism).   Some plates in their skull close early.   This is called craniosynostosis.   Often people with Chotzen Syndrome are mildly hard of hearing. Sometimes they're unusually short.   Occasionally the closing of the plates in their skull can compress their brain and slow their development.   Sometimes boys with Chotzen Syndrome have undescended testicles. 
$2935.00 is available towards the cost of my adoption!






 
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