Angels on their way...

Saturday, October 31, 2009

Arthrogryposis

taken from: http://en.wikipedia.org/wiki/Arthrogryposis

Arthrogryposis, also known as Arthrogryposis Multiplex Congenita, is a rare congenital disorder that is characterized by multiple joint contractures and can include muscle weakness and fibrosis. It is a non-progressive disease.

Frequently, the contractures are accompanied by muscle weakness, which further limits movement. AMC is typically symmetrical and involves all four extremities with some variation seen.


Here is a nice article about a successful adoption of a little one born with this disability:

Our Daughters Arthrogryposis

Our family has come in contact with so many beautiful children and families struggling with Arthrogryposis. They have been such an inspiration and encouragement to our family!

My husband and I did some ground work prior to accepting the referral of our daughter from the adoption agency. We attended a full-day seminar on Arthrogryposis at our local Children's Hospital headed by Dr. Judith Hall, the leading expert on the subject............

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The next Buddy Cruise will be July 19th-23rd 2010

, in conjunction with the NDSC Convention in Orlando, which is July 17th and 18th.
This is a very special time of education and fellowship with other families of Down syndrome.